Now Chairman and CEO of Amicus Therapeutics, John Crowley discusses his journey to uncover a cure for Pompe Disease, a disease that two of his youngsters had been born with. Crowleys emotion-packed presentation details what it indicates to genuinely do whatever it takes, against phenomenal odds, to reach a goal. Taking lifes adversity and turning it around to scale the heights of hope and inspiration, he personifies relentless determination and the power of never giving up. To discover much more about John Crowley, check out www.apbspeakers.com
Video Rating: five / five
Tuesday, May 3, 2011
Girl beating odds of Pompe disease
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5 comments:
my dad got that. cant walk & cant understand him @ ALLLL
Just so, so sad.
well..john is really a hero...he never gave up on his children....i dont know anybody who love their children like john did......may god bless and john and his family.........
whether he considers himself a hero or not, John Crowley IS a hero to me. What an amazing person and father. I have two year olds who are happy and healthy, and I don't know if I had the strength to do what he did. After watching his story, I know that NOTHING is impossible. He and his family are truly inspirational to me!
I thank GOD 4this bc it lest's me know that there is hope n 2keep holding on bc it's sad 2say but my 1yr is living with this disease n she is still going strong so keep doing wut u do John 2help the kids all ova like my daughter n un ur family rn my prayers just keep holding on 2 GOD's unchanging hand bc ur not alone best wishes 2u n ur family n gudluck!! Please if u have a web site or a contact keep me posted!!!!
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